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Individuals who adjust well to unexpected events generally lead healthy, active, and happy lives after their injury. Individuals who do not adapt well to unexpected events tend to be less healthy, less active, and unhappier after their injury. Unhealthy behavior almost always leads to unhealthy results. When you neglect your personal care, you put yourself at greater risk for developing a wide range of health problems such as respiratory complications, urinary tract infection, and pressure sores. These problems can limit your ability to participate in activities. Substance abuse can complicate existing medical problems or lead to other health problems.

When you are first injured, it takes time to get use to your life after injury. Some people grieve longer than others, so the adjustment period is different for everyone. It may take as much as a year for you to accept the realities of your injury. You will also experience a continued process of adjusting to the unique issues that occur in your every day life as a person with SCI.

Healthy Adjustment to SCI
One of the biggest keys to adjusting to spinal cord injury is personal motivation. Individuals who are newly injured are often motivated to attend therapy sessions out of a desire to gain strength and function. You probably have a strong belief that your paralysis is only temporary, and you will soon return to your old, “normal” self. This hope is a common reaction after an injury. Unfortunately, it is far more likely for individuals to recover function based on their level and completeness of injury. In fact, only a few people actually fully recover from their injury. This does not mean that all hope is lost for a full or partial recovery. Almost all individuals with SCI continue to hope that they will walk again one day. However, a cure for paralysis may or may not come in your lifetime. A healthy approach to this reality is to move forward with your life after injury with the continued hope that advances in medicine will one day lead to a cure. In other words, do not wait on a cure to proceed with your life!

People who adjust well to life after injury are usually motivated to meet personal goals. These goals are different for everyone and often change throughout life. For example, your goal today may be to get a job, and you may want to have children in the future. Itt is up to you to find purpose in your life and the motivation to achieve your goals. It may help to think about what you wanted out of your life before you were injured. For example, you may have once strived for good health, an enjoyable job, and a loving family. There is no reason that you cannot continue to strive for the same things now that you have a spinal cord injury.

Healthy Family Adjustment to SCI
As an individual with SCI, it is important to recognize that your injury also has a tremendous impact on your family. Although they may not have to adjust to losing the use of their hands or ability to walk, your family may experience a loss of the way their life was before your injury. For example, they may have to adjust to the role of caregiver. They may need to work to help with family finances. All of the changes that they face can lead to added stress and anxiety. As your family comes to accept the injury, they face issues of adjustment similar to those you may experience.

Children are naturally curious and adjust to events by asking questions. They ask questions because they make few assumptions about how the injury impacts their life. Therefore, children adjust rather quickly to an injury if their questions are answered in a clear, honest manner.

If you are a family member, healthy family adjustment is, essentially, taking care of you. For example, you can take time away from your loved one to do those things that you enjoy. You can help minimize your stress and anxiety by working to replace your own false assumptions, unrealistic ideas, and irrational beliefs. You can start by learning the facts about SCI. Then, challenge your irrational beliefs with evidence to dispute your beliefs. Finally, replace your false information with facts. Hopefully, you will soon discover that you too are living a healthier, happier, and more satisfying life.

Conclusion
No matter if you have a spinal cord injury or not, you have control over your life by choosing how you want to think about your situation. You can be happy and more hopeful about your life, but it will only happen when you work to make it happen. Your thoughts, feelings, and behavior do not change overnight. It takes time to grieve your loss and come to accept the realities of the injury. Then, you face a continued process of adjusting to everyday issues of living with SCI. If you avoid false assumptions, unrealistic ideas, and irrational beliefs, you will give yourself more opportunities to reach your goals and have the life that you desire.

Hello everyone this year for Halloween we’re doing something special. Not only because it’s Halloween but also because it is our One Year Anniversary since we launched our company. We are proud of all the hard work and dedication that everyone has put in developing this company. It continues to be our goal to help disabled gamers get back in the game and provide the tools to do so.

Starting this month we are giving everyone the opportunity to purchase an LP pad at 15% off the regular price. Use PROMO CODE; ghostpad13 when you place your order. To order your LP pad visit us at www.lppad.com but hurry this order last only till October 31st 2013. image

CEO Luis Peña & VP Kaylin Winkelmann

CEO Luis Peña & VP Kaylin Winkelmann

A Casa Grande man who is a former U.S. Border Patrol agent created and patented a video game controller for people with severe spinal cord injuries.
Luis Pena formed LP Accessible Technologies and created the controller out of necessity. He was injured in an auto accident on the job in 2007 and is a quadriplegic.
His company focuses on building video game controllers that disabled people can use to play video games.
A longtime video game buff, Pena missed playing games after he recovered from the accident. So, he set out to create a controller he, and other people with disabilities, could use.
The result is the LP Pad, which Pena says is just like an Xbox remote control except for its size. It operates like a regular remote through Bluetooth technology and is fully compatible with the Xbox 360 gaming system.
It weighs less than a pound and is made specifically to sit on the user’s lap. The controller features large buttons that are activated simply by brushing a hand across them.
“People who are like me can only push with like three or four pounds of pressure,” Pena said.
Or, users can plug a “chin stick” into the LP Pad, and they’re ready to play any video game made for the Xbox.
Pena said he is working hard to get the controller available for use on PS3 gaming systems and hopes to have one developed within a year.
For now, he is taking his controller all over the country to show people with disabilities how they can again enjoy playing video games.
“I’m hoping eventually we can get a licensing agreement from Microsoft so we can sell these game controllers at a lower cost at Best Buy, GameStop, Wal-Mart, anywhere,” Pena said.
Pena’s controllers sell for $399.99. The controller can be purchased at lpaccessibletechnologies.com.
The back story
Oct. 18, 2007, is a date Pena will never forget, even though he still doesn’t know exactly what happened that day.
He remembers going to the bank to open an account and was scheduled to work that night, beginning a “camp duty” in which agents stay in the desert for seven days. Pena’s been told he reported to work at the Border Patrol station in Casa Grande and was en route to back up another agent in the desert — but he never made it there.
Investigators don’t know exactly what happened except that his vehicle rolled over while traveling through the Tohono O’odham Nation.
“I was driving on a straightaway — you could see skid marks go right and come back left and then I rolled over,” Pena said. “The assumption is that perhaps cattle or horses got in the way and that’s what made me roll over. We’ll never know for sure.” Pena said he was strapped in and not ejected.
Pena woke up a month later at University Medical Center in Tucson and was told he was paralyzed from the chest down after suffering a C6-C7 spinal injury. He said the doctors immediately sedated him after he woke up.
“Knowing what my body looked like before — when I woke up and looked at my arms and saw the atrophy, I really freaked out,” he said.
“It’s one of those things that because of my training in martial arts and so many people coming to help me out, I just was able to say ‘OK, this is what it is and it’s time to move on to a new chapter in my life.’”
After his injury, Pena and his family lived in a hotel for eight months while renovations were be made to his two-story home, making it wheelchair accessible. An elevator was installed, his yard relandscaped and he was given a custom van that he still drives.
Pena was officially retired from the Border Patrol in 2012, ending his nine-year career with Homeland Security. Prior to joining the Border Patrol, Pena was a police officer with the Amtrak Police Department in Philadelphia and helped in the aftermath of the Sept. 11, 2011, terrorism attacks in New York City.
Before his accident, Pena was active in martial arts, a fourth-degree black belt in four different styles and also fought in mixed martial arts.
The new story
Pena requires assistance from a caregiver, and after four years of help from Kaylin Winkelmann, he says she’s his best friend. Winkelmann is also Pena’s business partner in LP Accessible Technologies.
Starting the company was a big step for Pena.
“It’s hard not to get excited and at the same time we’re nervous because we spent so much time and money just trying to get the prototype pad working correctly,” he said. Pena and Winkelmann travel to hospitals, rehabilitation centers, trade shows and conventions to demonstrate the controller.
“Everybody that has used it absolutely falls in love with it. There is nothing out there at all for people like us,” with spinal cord injuries, Pena said.

CEO Luis Peña & VP Kaylin Winkelmann

CEO Luis Peña & VP Kaylin Winkelmann

imageBBC News and a host of other media outlets are featuring an exciting breakthrough in the repair of spinal cord injuries in paralysed rats. The rats have regained bladder control, a major issue for people living with spinal cord injury, in response to nerve cell transplants alongside a series of injections of chondroitinase. http://www.bbc.co.uk/news/health-23051516

The project led by Dr Jerry Silver of Case Western Reserve Medical School, Cleveland, Ohio, builds on the findings of a previous project funded by Spinal Research which saw this approach restore independent breathing in rats. An interesting side effect they noted during the original work was the change in bladder function, which prompted the project now making headlines. http://www.bbc.co.uk/news/health-14139204

A major hurdle in spinal cord repair is the scar tissue that forms at the site of an injury. This new project’s use of chondroitinase, known to breakdown scarring, in addition to the graft of nerve tissue on the injured spinal cord means that injured nerve cells could regrow – some as long as 2cm. As a result the rats regained bladder function meaning that they could urinate unaided.

Dr Mark Bacon, Director of Research at Spinal Research commented:

“It is increasingly evident that if we can establish better communication between the cord above the injury and the cord below, as Silver and colleagues have, we can engage with an intelligent cord that can make use of even rudimental signals and turn them into functionally useful activities. Coordinated bladder function has enormous beneficial consequences for people with spinal cord injury and this is extremely encouraging work showing we are going in the right direction.”

It is hoped that this approach or similar will eventually be used to help people living with paralysis regain independent bladder control.

January 23, 2013 – Doctors at The Miami Project to Cure Paralysis, a Center of Excellence at the University of Miami Miller School of Medicine, performed the first-ever Food and Drug Administration approved Schwann cell transplantation in a patient with a new spinal cord injury. The procedure, performed at the University of Miami/Jackson Memorial Medical Center, is a Phase 1 clinical trial designed to evaluate the safety and feasibility of transplanting the patient’s own Schwann cells.

“This historic clinical trial represents a giant step forward in a field of medicine where each tangible step has tremendous value. This trial, and these first patients in this trial specifically, are extremely important to our mission of curing paralysis,” said neurosurgeon Barth Green, M.D., Co-Founder and Chairman of The Miami Project, and Professor and Chair of Neurological Surgery. “The Miami Project team includes hundreds of scientists, clinicians, and technicians who have joined hands to make the ‘impossible possible,’ for which this trial is a key goal and dream now being realized. This achievement reaffirms that the tens of millions of dollars and the incalculable work hours were well invested in this first of a kind human Schwann cell project.”

Led by W. Dalton Dietrich, Ph.D., Scientific Director of The Miami Project and Professor of Neurological Surgery, Neurology and Cell Biology & Anatomy, the Schwann cell clinical trial team at The Miami Project is composed of a multi-disciplinary group of basic science and clinical faculty members, scientific staff, and regulatory personnel focused on advancing the trial. The transplantation procedure was conducted by the Principal Investigators of the trial, Drs. Allan Levi, M.D., Ph.D., Professor of Neurological Surgery, Orthopedics, and Rehabilitation, and James Guest, M.D., Ph.D., Associate Professor of Neurological Surgery. The patient had a neurologically complete thoracic spinal injury and received the transplantation of autologous Schwann cells about four weeks post-injury. There have been no adverse events and the team is moving forward with the trial.

“As a basic scientist, the hope is always to increase knowledge and discovery,” said Dietrich. “Not every day are you able to see that translated into the clinical realm with the hopes of bettering the lives of those suffering, so this Phase I clinical trial is a vital step for the field of SCI research, and for The Miami Project team that has been working diligently on this therapeutic concept for more than a quarter of a century. This trial, when completed successfully, will lay the critical foundation for future cell-based therapies to target spinal cord injuries.”

The Miami Project clinical trial will enroll a total of eight participants with acute thoracic SCI. Newly injured patients brought to the trauma center would have to meet the stringent inclusion criteria. The participants will undergo a biopsy of a sensory nerve in one leg to obtain the tissue from which to grow their own Schwann cells. The Schwann cells are then grown in a state-of-the art culturing facility for three to five weeks to generate the number of cells necessary for transplantation, and to undergo the strict purification process. By the time the Schwann cells are surgically transplanted into the injury site, participants will be 26-42 days post-injury.

All procedures will be conducted at UM/Jackson and The Miami Project to Cure Paralysis, with colleagues at the University of Miami Miller School of Medicine. Each participant will be followed intensively for one year after receiving the transplantation surgery, and their neurologic status, medical status, pain symptoms, and muscle spasticity will be evaluated. It is expected that it could be two to three years from the time the first subject is enrolled until the final subject is one year post-transplantation. All participants will continue to be monitored for an additional four years under a separate clinical protocol. This Phase I trial is the foundation upon which The Miami Project will develop future cell transplant trials targeting different types of injuries, times post-injury, and therapeutic combinations.

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Found this article at http://www.bbc.co.uk/news/health-23051516 and I had to share it.. We are getting so close!!!! This is such a break through, we are well on your way!
Enjoy the article and SPREAD THE WORD!!!

Nerve cells ‘re-grown’ in rats after spinal injuryBy Helen Briggs

BBC News
Nerve regeneration in the rat Nerve regeneration in the rat Continue reading the main story
Related Stories
Paralysed rats ‘learn to walk’

US scientists say they have made progress in repairing spinal cord injuries in paralysed rats.

Rats regained some bladder control after surgery to transplant nerve cells into the spinal cord, combined with injections of a cocktail of chemicals.

The study, published in the Journal of Neuroscience, could raise hopes for one day treating paralysed patients.

But UK experts say it will take several years of research before human clinical trials can be considered.

Scientists have tried for decades to use transplants of nerve cells to restore function in paralysed animals by bridging the gap in the broken spinal cord.

However, coaxing the cells to grow and form new connections has proved elusive.

One problem is the growth of scar tissue as the body’s responds to injury, which seems to block cell regeneration.

Continue reading the main story

Start Quote
If we can show in a larger animal that our technique works and does no additional harm I see no reason why we couldn’t move rapidly in humans”
End Quote
Dr Jerry Silver

Case Western Reserve Medical School, Cleveland, Ohio

US scientists carried out complex surgery to transplant nerves from the rodents’ ribs into the gap in the middle of their spinal cord.

They also used a special “glue” that boosts cell growth together with a chemical that breaks down scar tissue in an attempt to encourage the nerve cells to regenerate and connect up.

The researchers found for the first time that injured nerve cells could re-grow for “remarkably long distances” (about 2cm).

They said that while the rats did not regain the ability to walk, they did recover some bladder function.

Lead author Dr Jerry Silver of Case Western Reserve Medical School, Cleveland, Ohio, said: “Although animals did not regain the ability to walk, they did recover a remarkable measure of urinary control.”

Co-author Dr Yu-Shang Lee of the Cleveland Clinic, Ohio, added: “This is the first time that significant bladder function has been restored via nerve regeneration after a devastating cord injury.”

The findings may help future efforts to restore other functions lost after spinal cord injury.

They also raise hope that similar strategies could one day be used to restore bladder function in people with severe spinal cord injuries.

Dr Silver said further animal experiments will be needed to see if the technique could work in humans.

He told BBC News: “If we can show in a larger animal that our technique works and does no additional harm I see no reason why we couldn’t move rapidly in humans.”

‘Remarkable advance’

Commenting on the study, Dr Elizabeth Bradbury of King’s College London said several challenges must be overcome before the therapy can be trialled in patients.

“There are a number of challenges before this therapy can be brought to the clinic,” she said.

“Nevertheless this is a remarkable advance which offers great hope for the future of restoring bladder function to spinal injured patients and if these challenges can be met we could be reaching clinical trials within three to five years.”

Dr John Williams, head of neuroscience and mental health at the Wellcome Trust, said the implications for people are not yet clear.

“This is one of a number of ways that one can approach restoration of bladder function in paralysed patients, but careful studies will be needed to optimise which of the technologies under investigation might be of most benefit to patients.”

The dream of regaining the ability to stand up and walk has come closer to reality for people paralyzed below the waist who thought they would never take another step.

A team of engineers at Vanderbilt University’s Center for Intelligent Mechatronics has developed a powered exoskeleton that enables people with severe spinal cord injuries to stand, walk, sit and climb stairs. Its light weight, compact size and modular design promise to provide users with an unprecedented degree of independence.

The university has several patents pending on the design and Parker Hannifin Corporation – a global leader in motion and control technologies – has signed an exclusive licensing agreement to develop a commercial version of the device, which it plans on introducing in 2014.image

Parker-Hannifin design concept for the commercial version of the exoskeleton. (Courtesy of Parker-Hannifin)
According to the National Spinal Cord Injury Statistical Center, somewhere between 236,000 to 327,000 people in the U.S. are living with serious spinal cord injuries. About 155,000 have paraplegia. The average age at injury is 41 and the estimated lifetime cost when it happens to a person of 50 ranges from $1.1 million to $2.5 million.

Until recently “wearable robots” were the stuff of science fiction. In the last 10 years, however, advances in robotics, microelectronics, battery and electric motor technologies advanced to the point where it has become practical to develop exoskeletons to aid people with disabilities. In fact, two companies – Argo Medical Technologies Ltd. in Israel and Ekso Bionics in Berkeley, Calif. – have developed products of this type and are marketing them in the U.S.

These devices act like an external skeleton. They strap in tightly around the torso. Rigid supports are strapped to the legs and extend from the hip to the knee and from the knee to the foot. The hip and knee joints are driven by computer-controlled electric motors powered by advanced batteries. Patients use the powered apparatus with walkers or forearm crutches to maintain their balance.

“You can think of our exoskeleton as a Segway with legs,” said Michael Goldfarb, the H. Fort Flowers Chair in Mechanical Engineering and professor of physical medicine and rehabilitation. “If the person wearing it leans forward, he moves forward. If he leans back and holds that position for a few seconds, he sits down. When he is sitting down, if he leans forward and holds that position for a few seconds, then he stands up.”

Goldfarb developed the system with funding from the National Institutes of Health and with the assistance of research engineer Don Truex, graduate students Hugo Quintero, Spencer Murray and Kevin Ha, and Ryan Farris, a former student who now works for Parker Hannifin.

“My kids have started calling me ‘Ironman,’” said Brian Shaffer, who was completely paralyzed from the waist down in an automobile accident on Christmas night 2010. He has been testing the Vanderbilt apparatus at the Nashville-area satellite facility of the Shepherd Center. Based in Atlanta, Shepherd Center is one the leading hospitals for spinal cord and brain injury rehabilitation in the U.S. and has provided the Vanderbilt engineers with the clinical feedback they need to develop the device.

Brian Shaffer testing the Vanderbilt exoskeleton at Shepherd Center’s satellite facility in Franklin, Tenn. (Joe Howell/Vanderbilt)
“It’s unbelievable to stand up again. It takes concentration to use it at first but, once you catch on, it’s not that hard: The device does all the work. I don’t expect that it will completely replace the wheelchair, but there are some situations, like walking your daughter down the aisle at her wedding or sitting in the bleachers watching your son play football, where it will be priceless,” said Shaffer, who has two sons and two daughters.

“This is an extremely exciting new technology,” said Clare Hartigan, a physical therapist at Shepherd Center who has worked with the Argo, Ekso and Vanderbilt devices. “All three models get people up and walking, which is fantastic.”

According to Hartigan, just getting people out of their wheelchairs and getting their bodies upright regularly can pay major health dividends. People who must rely on a wheelchair to move around can develop serious problems with their urinary, respiratory, cardiovascular and digestive systems, as well as getting osteoporosis, pressure sores, blood clots and other afflictions associated with lack of mobility. The risk for developing these conditions can be reduced considerably by regularly standing, moving and exercising their lower limbs.

The Vanderbilt design has some unique characteristics that have led Hartigan and her colleagues at Shepherd Center to conclude that it has the most promise as a rehabilitative and home device.

None of the exoskeletons have been approved yet for home use. But the Vanderbilt design has some intrinsic advantages. It has a modular design and is lighter and slimmer than the competition. As a result, it can provide its users with an unprecedented degree of independence. Users will be able to transport the compact device on the back of their wheelchair. When they reach a location where they want to walk, they will be able to put on the exoskeleton by themselves without getting out of the wheelchair. When they are done walking, they can sit back down in the same chair and take the device off or keep it on and propel the wheelchair to their next destination.

The Vanderbilt exoskeleton weighs about 27 pounds, nearly half the weight of the other models that weigh around 45 pounds. The other models are also bulkier so most users wearing them cannot fit into a standard-sized wheelchair.

From a rehabilitation perspective the Vanderbilt design also has two potential advantages, Hartigan pointed out:

The amount of robotic assistance adjusts automatically for users who have some muscle control in their legs. This allows them to use their own muscles while walking. When a user is totally paralyzed, the device does all the work. The other designs provide all the power all of the time.
It is the only wearable robot that incorporates a proven rehabilitation technology called functional electrical stimulation. FES applies small electrical pulses to paralyzed muscles, causing them to contract and relax. FES can improve strength in the legs of people with incomplete paraplegia. For complete paraplegics, FES can improve circulation, change bone density and reduce muscle atrophy.
There is also the matter of cost. The price tags of other rehabilitation model exoskeletons have been reported to be as high as $140,000 apiece, plus a hefty annual service fee. Parker Hannifin hasn’t set a price for the Vanderbilt exoskeleton, but Goldfarb is hopeful that its minimalist design combined with Parker Hannifin’s manufacturing capability will translate into a more affordable product. “It would be wonderful if we could get the price down to a level where individuals could afford them and insurance companies would cover them,” he said.

Meanwhile, Hartigan has advice for potential users: “These new devices for walking are here and they are getting better and better. However, a person has to be physically fit to use them. They have to keep their weight below 220 pounds, develop adequate upper body strength to use a walker or forearm crutches and maintain flexibility in their shoulder, hip, knee and ankle joints … which is not that easy when a person has relied on a wheelchair for months or even years.”

Watch: Professor Michael Goldfarb’s personal reasons for working on robotics to help paralyzed people.

The research was funded by a grant from the National Institute of Child Health and Human Development numbered R01HD059832.

Contact:
David Salisbury, (615) 322-NEWS
david.salisbury@vanderbilt.edu

Anyone else totally amped about this game?? I’ve heard it’s the best one yet.. Here’s the 411 on what to expect on the new game:

The United States has a military presence in two thirds of countries around the world. A group of 12 have had enough and initiate a terror ultimatum called the Blacklist — a deadly countdown of escalating terrorist attacks on U.S. interests. Sam Fisher is the leader of the newly formed 4th Echelon unit: a clandestine unit that answers solely to the President of the United States. Sam and his team must hunt down these terrorists by any means necessary, and stop the Blacklist countdown before it reaches zero.

Unleash the power of the most lethal agent to ever exist. You’ve been given the ultimate freedom to protect innocents against the Blacklist terror attacks known as — the freedom to use limitless force, to break every law, and to become the globe’s deadliest operative. If you succeed, the President of the United States will deny you exist. If you fail, millions will die.

I know I will be ADDICTED to this game!! What about you?? Leave us your thoughts and comments.Splinter-Cell-Blacklist_v2013_US_RP_X360boxart_160h

David-HahnThough most of us demand results and conclusions immediately, it can take years to determine whether or not a team struck gold or missed the boat on a draft pick.
Or at least that’s how it works in most cases. In the case of the Arizona Diamondbacks and their 34th round selection Cory Hahn, we already know they hit a home run.
A very long, powerful and memorable home run. As you’ll learn if you read through Manuel’s piece, there’s very little doubt that Hahn had the tools and the ability to mold himself into an early round selection during his time at Arizona St. And this would have been his big year, too, as the 2013 Draft officially marks his third year out of high school. When a player elects to go to college, that three year waiting period comes into play, so this is definitely the draft he would have been looking forward to as he continued to polish his skills.
That’s just one of the many reasons Arizona’s decision to select Hahn on Saturday is an incredibly awesome gesture. Another is explained by D-Backs CEO and team president, Derrick Hall. As if the story needed another special touch, selecting Hahn in the 34th round certainly provides it.
Simply put, this is a remarkably unselfish sacrifice of a draft pick and an equally inspiring effort by the D-Backs, which plays right into Hahn’s mission post-injury. His aspirations now are to inspire the uninspired, and there’s no better way to get that message and his story across than by making his dream come true.

By Mark Townsend.

We at LP Accessible Technologies would like to wish happy Mother’s Day to all the mothers out there. Special thank you to all the mothers that have disable children and are working hard to keep them going. Please know that we love you and we always cherish your hard work and dedication.